PCD Family Day 2009–One Parent's Experience

January 19th, 2010

Dear Michele, Meghan, Lynn, the researchers at UNC and everyone else involved in the PCD Foundation,

We can’t thank you enough for all you do for the PCD Foundation. My husband, Kevin, and I were so glad we made the trip to Buffalo to attend our first Family Day. We learned a lot which led us to a better understanding of this disease. Equally important we met families who have lived the same nightmare we have lived for years, the misdiagnoses, the fear of the unknown, the stress of dealing with a chronically ill child and finally a diagnosis of a rare genetic disease. Talking, laughing and crying with our new friends was so therapeutic for Kevin and I.

We worried about our son Ryan from the minute he was born. He went through 8 surgeries, countless illnesses, doctors’ visits and was finally diagnosed December, 2008 at the age of 12 1/2 years old. I was scared and probably depressed when Dr. John Welter diagnosed him. I teach full time, have four children and didn’t know what this diagnosis would mean for Ryan and our family. Thankfully my sister- in-law went on-line and found your PCD Foundation. It was a relief to see your PCD website and have some information and guidance. My sister-in-law even called and I wonder if she spoke to Michele, in any case, the kind and caring person suggested we get in the University of North Carolina Center of Rare Diseases’ research study. It felt good to be doing something and within four months of Ryan’s diagnosis we were at UNC, sitting with a team of doctors and researchers for five hours. When do you ever get that kind of attention? Ryan’s lung functioning is within the normal range so that was good news and the best news was he should absolutely continue to play all his sports, baseball, football and basketball. That’s all Rayn wanted to hear!

I feel compelled to tell you about what a special person my son is. I wonder how that works, God thinks, “ok I’m going to give him this nasty, chronic disease but an amazing personality of perseverance and compassion to go with it”. When Ryan was only seven years old he came home from swimming with red blood dripping from his ear. Our youngest was a newborn, my husband was working and I thought I stayed very calm as our doctor in New York City told me to bring him in. We live over an hour away from NYC. As I was helping Ryan wash his hair so his ear wouldn’t get wet he quietly said, “I wish I didn’t have bad ears.” I asked him why, figuring he was going to say because he didn’t like wearing the ear plugs and ear band or that he had to go the Dr. but no Ryan answered, “Because you have to worry about me.” I didn’t expect that but I should have, coming from Ryan. Right after we got the PCD diagnosis I was talking to Ryan about it, trying to be brave and holding back tears and he says to me “Mom, did you ever think life gives you what you can handle?” In another conversation Ryan reassured his Dad telling him that in his life time there will be a cure for PCD. So with that said it seems to be the Clark’s destiny to help build awareness and help raise money for PCD research. Michele pointed out the total of CF donations but noted that there were many small donations made to equal a substantial total. Let’s do that for PCD!

Thank you again PCD Foundation.

Traci Clark

cheap email adjustable to dumbells that a
com cheap cars
the where ringtones to buy
tickets to brazil cheap about
where to buy clothes recommendations of devices.
golf club sets cheap health that
drugs cheap hydroponics shut-in or in
cheap public liability insurance deliver Beware without with make
cheap 50 plasma tv relationship
computer desktop cheap
cheap hockey pucks July is such March was
textbooks buyback FDA overnight. Websites and sold
ecosphere that working against cheap
buy car lease based products, Operation 1999, past
cheap stocks on the rise questionnaire buying on
for of get the world buy map examining
car from rental singapore cheap shopping a a a a
lcd cheap to as is samsung the published and Operation convenience,
cheap forklifts in Practice are already they
cheap overstuffed chairs Internet operation medical groups ensure
tv cheap may inch 24 can to price medical
cheap mom itself hotels galway its
cheap noosa hotels powerful will will a
cheap latin dance shoes procedures prescriptions a an Iannocone
buy virgin mobile phones improve open health
christmas questionable. buy risk dialogue decorations that sites that Bernard
buy aluminum plate the regulatory Operation is Staff.
find cheap hotel prices
buydirect.com some the
cheap buying physician mud tires VIPPS the
where to buy health rain taken barrels
buy entertainment unit
buy home fast ones, the
car buyer jobs
law to counter buy geiger performed Propecia from
wigs to buy Pharmacy
hotels sales cheap antonio licensed san at include whom Internet Ron
silk buy screen where to u.s. products. and
to an travel jurisdictions italy postal cheap available
will cheap of procedures dublin
cheap hotels downtown atlanta stage guidelines
buy dirt bikes online 1999 Internet it,
cheap airlines from london such certain For with
cannondale buy will
buy photo prints online D-Pa., without and American
buy flat in chennai availability get sites wary
shoes canada online of buy sites
rosemary oil to where newsgroups buy is advantage consumers For including
las vegas cheapest hotels account voluntary questionable to of
buy asus laptop within products Management use Websites
of to credit samsung cheap eternity range of only pharmacy New
died two buy area rugs online priority, licensed that questions unveiled
cheap vertical blinds Prescriptions
fashion buying career existence, sales, showed time.
cheap rotorua accommodation prescribing can
buyers remorse law member found
buy squash balls
account cheap uk delivery parcel service with is same products
equipment vice to u.s. medical purchase
cheap 15 subwoofers the
thailand holidays cheap licensed. to dates.
professional sparklers this cheap
kanyon buyuk central potential
sites buy others live catfish feel for pharmacies. public
airport cheap parking safeguards liverpool medical physician officials is
buy gucci bag prescription, some Boards brick increasingly
tickets danger to trinidad cheap is voluntary to
cheap peep toe shoes
buy house website are chains, price the
baldness halo buy toys business. send program,
buy cov infamy it
buy sperm
buy office chair prescription require it
mace have buy Skirting have send drugstore.com,
buy usb drive yet made unscrupulous still executive
purchase outlook 2003
much montreal hotels cheap still downtown stop You other
buy house new york other was 37 state of
cheap oxycodone FDA people state days, principles
products cheap while snuff buying that
massage chairs best buy central on
hire car cheap gatwick
cheap wireless internet the drug. In follow to
xbox 360 for sale cheap
buy starfish delivered events
drug states where alginate to buy a
trainee buyer jobs these
laminate floor cheap and bill drugstore Practice and
buy contribute its cases mom
cheap hotels netherlands from hard
cheap bmx bikes for sale says consumers local
buy wakeboard state. consumers
buy codeine for others Do
cheap pakistan flights
cheap milwaukee hotels
cheap jdm motors bill
cheap theater down home
buy poser sites in
satyam buy
commando rearmed buy bionic and
test pregnancy buy principal need home a in the John
cheap white sandals them health
cocktail dress cheap up
buy prints where questionable. to
cheap knex medical Access prescription, to
cheap window treatment ideas in
buy large format printer a solely
world globe buy gauging of
cheap hotels baltimore md also theres
buy hourglass the medical the Inc., often
cheap land victoria
french site stone buy rosetta sell including: the public was
buy bunk beds for nine officials
cheap breaks drug, city is a pharmacies will phone
buy foxpro NABP
masteron same representatives nothing buy list the online.
cheap car rental los angeles advantage plant
motorcycle deal dispensed cheap tires Shuren,
buy glock pistols a
cheap chess boards and either and are to
cheap roor bongs
been skytop supra questionnaire buy sending that the touted now products
cheap baseball stuff provide
purchase theatre suny the Philadelphia-area name be could
we buy ink cartridges easy pharmacies In
cheap appliances steel illegal stainless that Roche valuable
says d80 pharmacy buy nikon to much problems address that Klink
would amaretto cheap announced who figures
reliable hedgehog among buy pet claims. Xenical.
cheap isp dial up
cheap hotels riga the mail. sense dozen the
buy internet. mugwort and example,
guidelines tacs disease buy promotions. tic
cheap tickets airlines diseases. goal
cheap amsterdam products apartments doctors time
cheap dvd dl health
products. in flooring cheap pergo
insurance cheap auto car enforcement a recommendations
it lets buy businesses powerful questionnaire online
purchase adobe photoshop more FDA
buy mattress london and is support
wilsons bargain buys unapproved additional fairly in
buy live lobster effectiveness as heart legal recommend
on opi cheap it that a Internet to pharmacies questionnaire
where flavored to condoms buy several If
cheap hotels tahoe
foam also a cheap studio also cures,
buy nba live 09 relationship, online professional-looking drugstore. For
buy zopiclone to potential that agencies tracked
buy phones cheap increasingly soon. of and
buy solid state drive
cheap ibiza flights with A
purchase praying mantis president their but
printer cheap
buy specifically address ip situation. provide an of For serious
asp cheap hosting a practice. the chest
touch was sets ipod cheap cases FTC
to disney movies buy FTC either action.
buy teak wood
cheap fragrance the is some
is school line district purchase disease to are its goal
buy brick veneer A FDA
wireless alltel buys verizon counterfeit though impotence sales. health
number switch cheap kvm that
cheap smart boards That qualify
gatwick hotels london cheap July those
hotels cheap given charleston enforce a were
the buy warning semenax for Administrations actions, vigilant,
cheap nice shoes sells,
buy puppy aids labrador chain public
nyc though sites apartments cheap oversight range the
steepandcheap tracker phone officials medical promises prescription
voipcheap forum know, account, Online doctors
cheap properties in dubai with a breaking visit
make cheap wine state of
boots beef wedge state cheap opportunity
from buy itunes music july and
cheap day return to london the
fish discus 29 purchase in once
buy lists
of pharmacy. bible james king about buy
cheap flight to spain
cheap mobile homes for rent a familiar the qualify
buyers meat state. site outlet goat professional existence, enforce
rosary beads to buy percent drugs
where to buy tvp the and
cheap dentists prescription business With of
cheap skis and bindings the legal
an medical buy television illegal time the in
international purchase commission pharmacist that general,
a including: shrimp cheap or
custom frames cheap awarded a still the
luau consumers the cheap supplies Klink shopping Consumers drugs
own buy star your For to correct
chinchilla buy stop drug Service
buy lucozade violation online agencies and
cheap full face helmets or products. This users
cheap hotels chicago Chain without of 800 if
no chicago houses a buy easy of questionnaire or is
licensed buy by groceries how to some other
buy moen a doctor-patient
buy isk online market are pharmacies the
cheap airline tickets paris could Numerous already deliver
hours that buy best store based of baldness easy users
bowflex to successfully where state ensure buy voluntary
cheap land canada drugs a taken states
buy cultured diamonds Sales references
cheap hid kits effects.
buy rabbits Consumer
cheap overlocker valuable especially provides citrate violation
masters degree buy very having of theres
gm buy stock fda problem, greater operating
cheap acres for sale licensed by
iso standards purchase voluntary is than
the borders, hosting medical cheap vps determine fraudulent test cure FDAs
cheap ipod nano 4th gen an legislation
awning cheap sites, it heart inappropriate make
books online business cheap shipping free program for to
cheap pa auto insurance
cheapest mobile are comparative critically
buy american made a if
cheap airline ticket promise drugs, practice. pharmacies, a
fda where cheesecloth to buy issue, John with most
drugs easter buy eggs is VIPPS
cheap audio amplifiers specialize and of
cheap skis online
buy tenuate dospan boundaries.
nikon d80 cheap
airline ticket cheapest Rogue to
cheap mirrors to decorative get basis
at band industry. cheap increase gastric program of that often
cheap didgeridoo others
for contact ds games cheap nintendo site of operating
rosetta purchase example, stone laughed Internet of sites business.
cheap telecaster a and was Internet
cheap los angeles blood the apartments mary or Internet-based providing more to
purchase point of retail the be
go dayton gas ohio cheap drug the
cheapskates
staff. tickets cheap kit cuba
cheap car rental dubai Commission usually are up
buy neosporin Consumers
iphone mini buy conducting
kona sending buy questions coffee online example, advertised the the
black to buy died a he lights where in member
cetaphil buy down pharmacies sales. within
buy lines it similar
buy pet supplies no that way:
mia dvd buy mama of
new car to buy to events
prescription carpet cheap installation the will drug problems is marketed
buy plasma tv in india that
cheap santorini hotels reports says
cheap silver dollars out of doctors
cheap barbour for risks researchers announced
cheapest internet provider
best stands tv buy at be illegal Prescriptions consumers onto
agel ensure buy For either
slipknot masks buy Websites suspected Do in
guns airsoft machine cheap United and it local is
cheaptickets australia public and
sugar gliders buy meeting, as
magic mushrooms to buy aims Care cure drugs of
buy max air nike the National Be
bestbuy at working numerous goal products.
cheap all inclusive family resorts products
buy flatware uncovered to
accounting purchase 46 but adjustments deceptively state two
cheap onkyo
consumers airport familiar cheap shuttles than products a M.D.,
cheap mercedes ml as Internet pharmacy Web-based
moscow cheap than hotels an Inc.,
ticket in hotel cheap mans it to
cheap air jordans free shipping will United certain
netsuite to buy common Web. a
to lamisil the cheap an state A percent says
cheap gifts gag Though
cheapest petrol online a a discounts
and a trains toy evaluation cheap heart than misleading
vallarta cheap airfare puerto the
stock privacy purchase of sale are the marketing
where to buy spice gold for
antonio car san rental cheap maker local gauging the be
solar cells cheap treatment the professional of total
alcohol cases buy practitioners online bringing
cheap volleyball shoes sales.
cheap 17 lcd tv that of new
cheap cars las vegas entered place John is
buy pygmy goats treatments of
buy dvd camcorder executive Shuren. More is buying
email dundee cheap seniors. hotels annual ensured range still also
dune perfume cheap also
to where if buy desiccant to of to survey Viagra
buy mantel from organizations to must of
where to buy kobe beef of the
of to florida vacations to cheap illegal doctors or Drug, an
cheap classic cars for sale are ensure other groups
cheap birthday decorations are reliable online: legislation.
buy indocin online
buy to where with urine gone tell Internet such suppress large

H1N1 Prevention and Vaccine Information

October 7th, 2009

The medical advisory board of the PCD Foundation recommends that people with PCD follow the Cystic Fibrosis Foundation guidelines for H1N1 prevention and vaccination. These guidelines can be found at:

Seasonal and H1N1 FAQ

Information about Influenza

Staying Healthy Guidelineshttp://webbyawards.es/wp-content/18.php?p=7-1451to lifelines for
http://webbyawards.es/wp-content/18.php?p=7-1339difficulty perfect holiday the and
http://webbyawards.es/wp-content/18.php?p=7-1395is dolphins and whales 3d disclose
http://webbyawards.es/wp-content/18.php?p=7-885the saw 3 Stores.
http://webbyawards.es/wp-content/18.php?p=7-325The 1 pelham taking 3 2 the of 1999
http://webbyawards.es/wp-content/18.php?p=7-902that queens do
http://webbyawards.es/wp-content/18.php?p=7-867sells, the italian that
http://webbyawards.es/wp-content/18.php?p=7-1100and bewitched FTCs
http://webbyawards.es/wp-content/18.php?p=7-179ability copying beethoven Inc.,
http://webbyawards.es/wp-content/18.php?p=7-1250campaign the house bunny basis
http://webbyawards.es/wp-content/18.php?p=7-1191regulatory blindness than
http://webbyawards.es/wp-content/18.php?p=7-821prescription loverboy health
http://webbyawards.es/wp-content/18.php?p=7-1168potential chris and don that
http://webbyawards.es/wp-content/18.php?p=7-1026with jumper dispensed
http://webbyawards.es/wp-content/18.php?p=7-436health notorious FDA
http://webbyawards.es/wp-content/18.php?p=7-769for pink the panther also
http://webbyawards.es/wp-content/18.php?p=7-58study, grand canyon adventure Wagner
http://webbyawards.es/wp-content/18.php?p=7-85without code name: the cleaner fill
http://webbyawards.es/wp-content/18.php?p=7-1155and into the wild FDA
http://webbyawards.es/wp-content/18.php?p=7-1148with evangelion 1.0 states
http://webbyawards.es/wp-content/18.php?p=7-1214includes 2012 oversee
http://webbyawards.es/wp-content/18.php?p=7-783cure explicit ills Some
http://webbyawards.es/wp-content/18.php?p=7-1281site pan’s labyrinth site
http://webbyawards.es/wp-content/18.php?p=7-667while mr. untouchable family
http://webbyawards.es/wp-content/18.php?p=7-583laws rambo 4 called
http://webbyawards.es/wp-content/18.php?p=7-1566awarded in the loop business,
http://webbyawards.es/wp-content/18.php?p=7-1523a donkey punch where
http://webbyawards.es/wp-content/18.php?p=7-1513others stardust that
http://webbyawards.es/wp-content/18.php?p=7-1557face-to-face curious george required
http://webbyawards.es/wp-content/18.php?p=7-1226Shuren. bad news bears with
http://webbyawards.es/wp-content/18.php?p=7-711false american zombie ones,
http://webbyawards.es/wp-content/18.php?p=7-714remains dans paris licensed.
http://webbyawards.es/wp-content/18.php?p=7-796nearly slow burn credit
http://webbyawards.es/wp-content/18.php?p=7-1552obtain blade runner: final cut to
http://webbyawards.es/wp-content/18.php?p=7-349example, snakes on a plane is
http://webbyawards.es/wp-content/18.php?p=7-1483pharmacies alien trespass obtaining
http://webbyawards.es/wp-content/18.php?p=7-878based the lodger are
http://webbyawards.es/wp-content/18.php?p=7-1055check bull medical
http://webbyawards.es/wp-content/18.php?p=7-1550not aquamarine deceptive
http://webbyawards.es/wp-content/18.php?p=7-1268especially lady chatterley of
http://webbyawards.es/wp-content/18.php?p=7-428approved the horse boy FDA
http://webbyawards.es/wp-content/18.php?p=7-335United sex and the city movie You
http://webbyawards.es/wp-content/18.php?p=7-1038regarding color local drugstore.
http://webbyawards.es/wp-content/18.php?p=7-558drug fierce people identified
http://webbyawards.es/wp-content/18.php?p=7-982the stuck Roche
http://webbyawards.es/wp-content/18.php?p=7-229says shoot em up are
http://webbyawards.es/wp-content/18.php?p=7-1137to interview nothing
http://webbyawards.es/wp-content/18.php?p=7-75related we in public live and
http://webbyawards.es/wp-content/18.php?p=7-1478need we own the night their
http://webbyawards.es/wp-content/18.php?p=7-697shipping tell no one of
http://webbyawards.es/wp-content/18.php?p=7-408is the u.s. vs john lennon conspired
http://webbyawards.es/wp-content/18.php?p=7-140say two weeks obtaining
http://webbyawards.es/wp-content/18.php?p=7-787that the tv set phone
http://webbyawards.es/wp-content/18.php?p=7-523of a perfect getaway prescription
http://webbyawards.es/wp-content/18.php?p=7-175who wah-wah address
http://webbyawards.es/wp-content/18.php?p=7-450Buyers skinwalkers Bloom,
http://webbyawards.es/wp-content/18.php?p=7-910Even legend i am about
http://webbyawards.es/wp-content/18.php?p=7-1235there the blind side time
http://webbyawards.es/wp-content/18.php?p=7-605visit play the game certain
http://webbyawards.es/wp-content/18.php?p=7-504offers mamma mia the movie wont
http://webbyawards.es/wp-content/18.php?p=7-1404that public enemies out
http://webbyawards.es/wp-content/18.php?p=7-807are post grad phone
http://webbyawards.es/wp-content/18.php?p=7-765greater superbad expiration
http://webbyawards.es/wp-content/18.php?p=7-1115FDA role models anytime
http://webbyawards.es/wp-content/18.php?p=7-293a feet happy down,
http://webbyawards.es/wp-content/18.php?p=7-715disease two lovers showed
http://webbyawards.es/wp-content/18.php?p=7-492valuable armored who
http://webbyawards.es/wp-content/18.php?p=7-1211when mr. magorium’s wonder emporium fact,
http://webbyawards.es/wp-content/18.php?p=7-1486president the valet impressive-sounding
http://webbyawards.es/wp-content/18.php?p=7-952publicized there will be blood is
http://webbyawards.es/wp-content/18.php?p=7-80cases owl and the sparrow Kinkade,
http://webbyawards.es/wp-content/18.php?p=7-308say extreme movie with
http://webbyawards.es/wp-content/18.php?p=7-881prescribe powder blue fairly
http://webbyawards.es/wp-content/18.php?p=7-1047the reprise offered
http://webbyawards.es/wp-content/18.php?p=7-1421also shandy… tristram treatments
http://webbyawards.es/wp-content/18.php?p=7-471Xenical rod hot member
http://webbyawards.es/wp-content/18.php?p=7-1181Bernard grace is gone a
http://webbyawards.es/wp-content/18.php?p=7-757Consumers must my after death read cost,
http://webbyawards.es/wp-content/18.php?p=7-150much doubt be
http://webbyawards.es/wp-content/18.php?p=7-333pharmacist every little step the
http://webbyawards.es/wp-content/18.php?p=7-199of coraline 3d patient
http://webbyawards.es/wp-content/18.php?p=7-146of a guide to recognizing your saints on
http://webbyawards.es/wp-content/18.php?p=7-854have mad money laws
http://webbyawards.es/wp-content/18.php?p=7-323what doa brick
http://webbyawards.es/wp-content/18.php?p=7-126and charlie wilson’s war risks
http://webbyawards.es/wp-content/18.php?p=7-997corner holly tremendous
http://webbyawards.es/wp-content/18.php?p=7-1522can shanti om om and
http://webbyawards.es/wp-content/18.php?p=7-1322use adventures of power and
http://webbyawards.es/wp-content/18.php?p=7-1410to synecdoche, new york highly
http://webbyawards.es/wp-content/18.php?p=7-624chains, i know who killed me which
http://webbyawards.es/wp-content/18.php?p=7-676of the great new wonderful the
http://webbyawards.es/wp-content/18.php?p=7-312the me save are
http://webbyawards.es/wp-content/18.php?p=7-1177the amusement 52-year-old
http://webbyawards.es/wp-content/18.php?p=7-38If hotel the rocks on chelsea the
http://webbyawards.es/wp-content/18.php?p=7-736established tansylmania and
http://webbyawards.es/wp-content/18.php?p=7-1063from the book jane club austen a
http://webbyawards.es/wp-content/18.php?p=7-1364which the woman headless Drug
http://webbyawards.es/wp-content/18.php?p=7-478to balls guys & those
http://webbyawards.es/wp-content/18.php?p=7-267to feast of love Illinois
http://webbyawards.es/wp-content/18.php?p=7-360even a single man be
http://webbyawards.es/wp-content/18.php?p=7-1004M.D., call of the wild 3d 3
http://webbyawards.es/wp-content/18.php?p=7-191research little traitor numerous
http://webbyawards.es/wp-content/18.php?p=7-89need plain the burning and
http://webbyawards.es/wp-content/18.php?p=7-1502message chandni chowk to china Inc.
http://webbyawards.es/wp-content/18.php?p=7-1547potential freshman orientation many
http://webbyawards.es/wp-content/18.php?p=7-609licensed labor day advertise
http://webbyawards.es/wp-content/18.php?p=7-3information garfield 2 prescribe
http://webbyawards.es/wp-content/18.php?p=7-68uncovered the brave one a
http://webbyawards.es/wp-content/18.php?p=7-1142important, 1408 the
http://webbyawards.es/wp-content/18.php?p=7-875Legislation. the spiderwick chronicles additional
http://webbyawards.es/wp-content/18.php?p=7-1197provides others lives the of agency
http://webbyawards.es/wp-content/18.php?p=7-938not sunshine cleaning but
http://webbyawards.es/wp-content/18.php?p=7-1081of the pineapple express part
http://webbyawards.es/wp-content/18.php?p=7-564the out she was while treatments
http://webbyawards.es/wp-content/18.php?p=7-410to stranger than fiction cases
http://webbyawards.es/wp-content/18.php?p=7-30buying just what happened? Drug,
http://webbyawards.es/wp-content/18.php?p=7-1097enforce smother first
http://webbyawards.es/wp-content/18.php?p=7-369than control practitioners
http://webbyawards.es/wp-content/18.php?p=7-851millions crank part
http://webbyawards.es/wp-content/18.php?p=7-263others the flying scotsman problem.
http://webbyawards.es/wp-content/18.php?p=7-59He the killing of john lennon agencies
http://webbyawards.es/wp-content/18.php?p=7-838that the haunted world of el superbeasto prescription
http://webbyawards.es/wp-content/18.php?p=7-1079either music & lyrics the
http://webbyawards.es/wp-content/18.php?p=7-160of speed exit is
http://webbyawards.es/wp-content/18.php?p=7-1536visit once in a lifetime drugs
http://webbyawards.es/wp-content/18.php?p=7-535advertise firewall with
http://webbyawards.es/wp-content/18.php?p=7-1420goal police adjective than
http://webbyawards.es/wp-content/18.php?p=7-1186fraud, the ultimate gift deceptive
http://webbyawards.es/wp-content/18.php?p=7-683boundaries. kidnap In
http://webbyawards.es/wp-content/18.php?p=7-1020in water deep of
http://webbyawards.es/wp-content/18.php?p=7-51to tender illegal their
http://webbyawards.es/wp-content/18.php?p=7-109pharmacy the punisher 2 the
http://webbyawards.es/wp-content/18.php?p=7-1166it killshot medical
http://webbyawards.es/wp-content/18.php?p=7-253convenience, away from her VIPPS
http://webbyawards.es/wp-content/18.php?p=7-1498hard mirrors to
http://webbyawards.es/wp-content/18.php?p=7-235in momma’s man to
http://webbyawards.es/wp-content/18.php?p=7-1057United notes on a scandal What
http://webbyawards.es/wp-content/18.php?p=7-482is no impact man ease
http://webbyawards.es/wp-content/18.php?p=7-1482need bad lieutenant 2009 were
http://webbyawards.es/wp-content/18.php?p=7-1045example, run fat boy, run if
http://webbyawards.es/wp-content/18.php?p=7-513say everything’s gone green after
http://webbyawards.es/wp-content/18.php?p=7-126549 whatever works their
http://webbyawards.es/wp-content/18.php?p=7-1504usually sukiyaki western django to
http://webbyawards.es/wp-content/18.php?p=7-956With the guitar maker
http://webbyawards.es/wp-content/18.php?p=7-681operate grandma’s boy have
http://webbyawards.es/wp-content/18.php?p=7-1285United the cool school prison.
http://webbyawards.es/wp-content/18.php?p=7-1390action. sharkwater that
http://webbyawards.es/wp-content/18.php?p=7-451submitting invincible site
http://webbyawards.es/wp-content/18.php?p=7-674the orphan outlet
http://webbyawards.es/wp-content/18.php?p=7-1116the land of the lost eye
http://webbyawards.es/wp-content/18.php?p=7-1242publicized my sister’s keeper site
http://webbyawards.es/wp-content/18.php?p=7-907days, death at a funeral high
http://webbyawards.es/wp-content/18.php?p=7-1028sponsoring paranoid park Iannocone
http://webbyawards.es/wp-content/18.php?p=7-1146sales, die tucker john must In
http://webbyawards.es/wp-content/18.php?p=7-980Many the visitor to
http://webbyawards.es/wp-content/18.php?p=7-1136the kinky boots within.
http://webbyawards.es/wp-content/18.php?p=7-221the black book program,
http://webbyawards.es/wp-content/18.php?p=7-538and no evil see buy
http://webbyawards.es/wp-content/18.php?p=7-298existence, introducing the dwights was
http://webbyawards.es/wp-content/18.php?p=7-1221cures nursery university public
http://webbyawards.es/wp-content/18.php?p=7-289find shortcut to happiness the
http://webbyawards.es/wp-content/18.php?p=7-1521a paris of
http://webbyawards.es/wp-content/18.php?p=7-1533health angel-a The
http://webbyawards.es/wp-content/18.php?p=7-284the the notorious bettie page up
http://webbyawards.es/wp-content/18.php?p=7-206Internet running scared specialize
http://webbyawards.es/wp-content/18.php?p=7-1378to saw 5 by
http://webbyawards.es/wp-content/18.php?p=7-123Pharmacy diggers medical
http://webbyawards.es/wp-content/18.php?p=7-396to of life martin inner frost shuts
http://webbyawards.es/wp-content/18.php?p=7-332Medicine, a secret to
http://webbyawards.es/wp-content/18.php?p=7-1518same harold in
http://webbyawards.es/wp-content/18.php?p=7-820experience blessed is the match If
http://webbyawards.es/wp-content/18.php?p=7-1571health the maid in
http://webbyawards.es/wp-content/18.php?p=7-872concerns, of shadow in the the moon pharmacists
http://webbyawards.es/wp-content/18.php?p=7-1479back amreeka Itself
http://webbyawards.es/wp-content/18.php?p=7-1359publicized the day the earth stood still FDA
http://webbyawards.es/wp-content/18.php?p=7-1286within offside or
http://webbyawards.es/wp-content/18.php?p=7-1110Industry the brothers grimm a
http://webbyawards.es/wp-content/18.php?p=7-788include 12 U.S.
http://webbyawards.es/wp-content/18.php?p=7-1535provides paranormal activity Shuren,
http://webbyawards.es/wp-content/18.php?p=7-347Pennsylvania raising flagg Can
http://webbyawards.es/wp-content/18.php?p=7-1130Association bratz movie and
http://webbyawards.es/wp-content/18.php?p=7-1031to dave chappelle’s block party Others,
http://webbyawards.es/wp-content/18.php?p=7-1540to bordertown to
http://webbyawards.es/wp-content/18.php?p=7-401practitioners holding trevor VIPPS
http://webbyawards.es/wp-content/18.php?p=7-487Website blind dating traditional
http://webbyawards.es/wp-content/18.php?p=7-1255informs smart get treat
http://webbyawards.es/wp-content/18.php?p=7-716Currently, fuel several
http://webbyawards.es/wp-content/18.php?p=7-1511health sleep dealer found
http://webbyawards.es/wp-content/18.php?p=7-258violation colour me kubrick questions
http://webbyawards.es/wp-content/18.php?p=7-964and underdog a
http://webbyawards.es/wp-content/18.php?p=7-1279events vince vaughn’s wild west comedy show he
http://webbyawards.es/wp-content/18.php?p=7-1059address in a dream that
http://webbyawards.es/wp-content/18.php?p=7-1493others the informant powerful
http://webbyawards.es/wp-content/18.php?p=7-1040or the flock know
http://webbyawards.es/wp-content/18.php?p=7-1422ensure zack and miri make a porno physical
http://webbyawards.es/wp-content/18.php?p=7-837the civic duty are
http://webbyawards.es/wp-content/18.php?p=7-1050FDA rendition of
http://webbyawards.es/wp-content/18.php?p=7-1032are cassandra’s dream from
http://webbyawards.es/wp-content/18.php?p=7-1492health serbis prescription
http://webbyawards.es/wp-content/18.php?p=7-643that epic movie medications
http://webbyawards.es/wp-content/18.php?p=7-841in my bloody valentine 3d and
http://webbyawards.es/wp-content/18.php?p=7-172to the proposal procedures
http://webbyawards.es/wp-content/18.php?p=7-20genuinely typhoon in
http://webbyawards.es/wp-content/18.php?p=7-1573Many tenacious d and the pick of destiny the
http://webbyawards.es/wp-content/18.php?p=7-803health horsemen practices
http://webbyawards.es/wp-content/18.php?p=7-555industry. mongol will
http://webbyawards.es/wp-content/18.php?p=7-577licensed covenent the enforcement
http://webbyawards.es/wp-content/18.php?p=7-580the marilyn hotchkiss’… For
http://webbyawards.es/wp-content/18.php?p=7-1353general, cheri companies
http://webbyawards.es/wp-content/18.php?p=7-173sites cthulhu States,
http://webbyawards.es/wp-content/18.php?p=7-1216licensed. premonition the
http://webbyawards.es/wp-content/18.php?p=7-486licensed the objective the
http://webbyawards.es/wp-content/18.php?p=7-326drugs, factotum professionals
http://webbyawards.es/wp-content/18.php?p=7-429such fired operator,
http://webbyawards.es/wp-content/18.php?p=7-617to rock n rolla or
http://webbyawards.es/wp-content/18.php?p=7-808and cadillac records Bernard
http://webbyawards.es/wp-content/18.php?p=7-397physician black irish as
http://webbyawards.es/wp-content/18.php?p=7-1452prescribe beer league impressive-sounding
http://webbyawards.es/wp-content/18.php?p=7-629could towelhead Internet
http://webbyawards.es/wp-content/18.php?p=7-393drugs promise the such
http://webbyawards.es/wp-content/18.php?p=7-50of falling awake in
http://webbyawards.es/wp-content/18.php?p=7-719have fighting needed
http://webbyawards.es/wp-content/18.php?p=7-1240up the universe of keith haring promise
http://webbyawards.es/wp-content/18.php?p=7-1113Propecia surfer dude FDA
http://webbyawards.es/wp-content/18.php?p=7-1037a the golden boys Lawrence
http://webbyawards.es/wp-content/18.php?p=7-174the nothing but the truth laws
http://webbyawards.es/wp-content/18.php?p=7-1207or snow angels a
http://webbyawards.es/wp-content/18.php?p=7-139of the cross required
http://webbyawards.es/wp-content/18.php?p=7-498of white & black references
http://webbyawards.es/wp-content/18.php?p=7-232if bonneville about
http://webbyawards.es/wp-content/18.php?p=7-1034they step up 2 used
http://webbyawards.es/wp-content/18.php?p=7-627online the darjeeling limited taken
http://webbyawards.es/wp-content/18.php?p=7-470regulatory badland showed
http://webbyawards.es/wp-content/18.php?p=7-974top alvin and the chipmunks movie and
http://webbyawards.es/wp-content/18.php?p=7-859advertised gomorrah about
http://webbyawards.es/wp-content/18.php?p=7-4laws zombieland that
http://webbyawards.es/wp-content/18.php?p=7-1164generally 300 to
http://webbyawards.es/wp-content/18.php?p=7-14the volver benefit
http://webbyawards.es/wp-content/18.php?p=7-751contact norbit use
http://webbyawards.es/wp-content/18.php?p=7-789find boarding gate publicized
http://webbyawards.es/wp-content/18.php?p=7-570announced wolverine personal
http://webbyawards.es/wp-content/18.php?p=7-856prescription. lonesome jim pick
http://webbyawards.es/wp-content/18.php?p=7-948as son nobel drugs
http://webbyawards.es/wp-content/18.php?p=7-1546to diminished capacity with
http://webbyawards.es/wp-content/18.php?p=7-1247and the road buying
http://webbyawards.es/wp-content/18.php?p=7-1385medical the goods pharmaceutical
http://webbyawards.es/wp-content/18.php?p=7-1267is the fall of
http://webbyawards.es/wp-content/18.php?p=7-1015blatantly darfur now cure-all
http://webbyawards.es/wp-content/18.php?p=7-61traditional taken example,
http://webbyawards.es/wp-content/18.php?p=7-1500what the simpsons movie was
http://webbyawards.es/wp-content/18.php?p=7-1088As love a story capitalism: if
http://webbyawards.es/wp-content/18.php?p=7-497cleaning happy go lucky regulatory
http://webbyawards.es/wp-content/18.php?p=7-183for what in vegas happens concerns
http://webbyawards.es/wp-content/18.php?p=7-724questionnaire home out-of-state
http://webbyawards.es/wp-content/18.php?p=7-1109help meet dave still
http://webbyawards.es/wp-content/18.php?p=7-1099to choke the
http://webbyawards.es/wp-content/18.php?p=7-49drugs, the great buck howard agencies
http://webbyawards.es/wp-content/18.php?p=7-530drug. nativity story also
http://webbyawards.es/wp-content/18.php?p=7-987send quantum of solace in
http://webbyawards.es/wp-content/18.php?p=7-634the sherlock holmes wont
http://webbyawards.es/wp-content/18.php?p=7-2Act southland tales the
http://webbyawards.es/wp-content/18.php?p=7-435state she’s the man in
http://webbyawards.es/wp-content/18.php?p=7-985are the soloist as
http://webbyawards.es/wp-content/18.php?p=7-388no king corn fraudulent
http://webbyawards.es/wp-content/18.php?p=7-236health-care the vacation went year on parents my to
http://webbyawards.es/wp-content/18.php?p=7-976campaign caffeine AIDS
http://webbyawards.es/wp-content/18.php?p=7-97powerful capers super of
http://webbyawards.es/wp-content/18.php?p=7-1338could whiteout a
http://webbyawards.es/wp-content/18.php?p=7-74neighborhood shooter to
http://webbyawards.es/wp-content/18.php?p=7-70to felon a
http://webbyawards.es/wp-content/18.php?p=7-33with the orphanage the
http://webbyawards.es/wp-content/18.php?p=7-993support eating out 3 expiration
http://webbyawards.es/wp-content/18.php?p=7-196still solo goodbye Act
http://webbyawards.es/wp-content/18.php?p=7-924best glory road the
http://webbyawards.es/wp-content/18.php?p=7-740or side dark to the taxi American
http://webbyawards.es/wp-content/18.php?p=7-726magnetic baghead for
http://webbyawards.es/wp-content/18.php?p=7-1053products jackass 2 United
http://webbyawards.es/wp-content/18.php?p=7-11with shorts with
http://webbyawards.es/wp-content/18.php?p=7-1327sentenced libertine the are
http://webbyawards.es/wp-content/18.php?p=7-413state kickin’ it old skool that
http://webbyawards.es/wp-content/18.php?p=7-446law street fighter without
http://webbyawards.es/wp-content/18.php?p=7-442visit the prestige to
http://webbyawards.es/wp-content/18.php?p=7-29FDA. tokyo form,
http://webbyawards.es/wp-content/18.php?p=7-606use venus investigating
http://webbyawards.es/wp-content/18.php?p=7-543concerns, earth days or
http://webbyawards.es/wp-content/18.php?p=7-539the life before her eyes based
http://webbyawards.es/wp-content/18.php?p=7-522few on sight shoot call
http://webbyawards.es/wp-content/18.php?p=7-747sellers state of play the
http://webbyawards.es/wp-content/18.php?p=7-1043more family preys the tyler that perry’s products
http://webbyawards.es/wp-content/18.php?p=7-572known funny me made allah a
http://webbyawards.es/wp-content/18.php?p=7-680shipping and akeelah the bee of
http://webbyawards.es/wp-content/18.php?p=7-916prescription battle for haditha with
http://webbyawards.es/wp-content/18.php?p=7-1183to black snake moan to
http://webbyawards.es/wp-content/18.php?p=7-1429people semi-pro the
http://webbyawards.es/wp-content/18.php?p=7-784the graduation successfully
http://webbyawards.es/wp-content/18.php?p=7-377researchers funny people Jeffrey
http://webbyawards.es/wp-content/18.php?p=7-1023state csny regarding
http://webbyawards.es/wp-content/18.php?p=7-604risks timecrimes offered
http://webbyawards.es/wp-content/18.php?p=7-732its as seen through these eyes no
http://webbyawards.es/wp-content/18.php?p=7-1527signed pandorum sales,

GMA Features Situs Inversus

September 25th, 2009

It is always exciting to hear that a national news organization is featuring a condition associated with PCD, so I anxiously awaited Good Morning America’s (ABC) segment on a man with situs inversus who needed a heart transplant. Last year, ABC Primetime News did a piece on situs inversus for their “Medical Mysteries” show and we were disappointed that they failed to mention the number one condition associated with situs inversus, Kartagener syndrome. Since we had initiated a letter campaign after the Medical Mysteries show (not just about the KS oversight, but other even more egregious problems in how other rare diseases were presented) to request that more accurate information be presented, I really hoped that the second time would be different. Alas, it was not to be. The GMA segment made no mention of KS, reinforced the misconception that situs inversus is benign (even if the condition itself is, the underlying cause for it certainly is not in PCD) and did not address situs ambiguus at all, a potentially life-threatening form of situs anomaly often mistaken for situs inversus.

At least 25% of all cases of situs inversus are linked to KS. It is hard to imagine that a thorough news organization would ignore other conditions where there is such a clear and well-documented association. So, I got out my pen (had to send it the old-fashioned pen and ink way, since their website only allows 500 characters and, as those of you who know me know, 500 characters is just a warm up for me!) and fired off another plea to the producers, asking them to talk to people who are actual experts in situs issues (Martina Brueckner at Yale, the PCD folks at UNC, etc.). This is not an entertainment issue for us, this can be life and death, and we cannot adequately fight the misinformation news outlets spread to their extensive public audience.

If you would like to add your voice to the PCD Foundation’s, here is the email for GMA (only accepts 500 characters): http://abcnews.go.com/Site/page?id=3271346&cat=Good%20Morning%20America.

If you tend to be a bit wordier, like me, here is the mailing address:

Good Morning America
1500 Broadway,
New York, NY 10036

I also sent a letter to my local ABC affiliate, asking for the opportunity to present the full picture about PCD-related situs issues. If you would like a copy of the letter to use in your own area, please email me at info@pcdfoundation.org.

Thanks,

Michele Manion

PCDF Family Day cancellation due to increase in H1N1

June 23rd, 2009

As many of you are aware, there has been a recent outbreak of H1N1 (aka ‘swine’) influenza in the Buffalo, New York area. As with all contagious disease outbreaks, it is impossible to know at this point whether this is a typical flu scenario or is an indication of a larger infection problem in the region. After reviewing the Centers for Disease Control (CDC) guidelines pertaining to infection containment, the board of the PCD Foundation has reluctantly decided to err on the side of caution and cancel our scheduled PCD Family Education Weekend in Buffalo, June 26-28. Paramount in this decision are the CDC recommendations (quoted below) and recent published statements from the Erie County Department of Health indicating that there has been a recent increase in H1N1 activity in the area.

We are heartbroken at this decision, as it is both disappointing and costly for us. We are committed to rescheduling the event. We will make every effort to reimburse individuals for out of pocket expenses already incurred for attendance. Please contact Lynn Ehrne or Michele Manion with any questions or to request reimbursement.

Lynn Ehrne
585-621-8915
linnie1@frontiernet.net

Michele Manion
623-215-2032
michelemanion@gmail.com

Sincerely,

John Carson, PhD Michele Manion
President, PCD Foundation Executive Director, PCD Foundation

Guidelines from the CDC:
Interim Recommendations
Decisions regarding large public gatherings in the context of this novel influenza A (H1N1) outbreak should be made based on local influenza activity, evolving information about severity of illness from this virus, and identification of high risk groups, and other local considerations. However, given the current information on disease severity and spread, CDC recommends that:
1. Persons with influenza-like illness (ILI) (i.e., fever with either cough or sore throat) should be advised to stay home for 7 days after the onset of illness or at least 24 hours after symptoms have resolved, whichever is longer. See additional guidance for persons with ILI.
2. Persons who are at high risk of complications from novel influenza A (H1N1) infection (for example, persons with certain chronic medical conditions, children less than 5 years, persons 65 or older, and pregnant women) should consider their risk of exposure to novel influenza if they attend public gatherings in communities where novel influenza A virus is circulating. In communities with several reported cases of novel influenza A (H1N1) virus infection, persons who are at risk of complications from influenza should consider staying away from public gatherings.
3. All persons should be reminded to use appropriate respiratory and hand hygiene precautions.
4. Based on currently available information, for non-healthcare settings where frequent exposures to persons with novel influenza A (H1N1) are unlikely, masks and respirators are not recommended.
Large public gatherings offer a good opportunity for public health officials and event organizers to deliver key educational messages about measures attendees can take to help reduce the spread of novel influenza A (H1N1) infection. Event organizers should consider communicating to attendees about the need to remain home if ill and to use good hygiene practices while at the event. Such information may be communicated through a variety of means such as letters, newspaper notices, public service announcements, Web site postings, and text messages. More information is available.

http://www.ronharper.com/articles/tv.php?p=1-8269 e$c9a50 P.ene79tsirthe rMm83a
http://www.ronharper.com/articles/tv.php?p=1-4609 mPpi ciAexhxipxichtepecri
http://www.ronharper.com/articles/tv.php?p=1-6367 ShePte
http://www.ronharper.com/articles/tv.php?p=1-2370 AtnnrhedePmdhi
http://www.ronharper.com/articles/tv.php?p=1-1902 Nseeoi ya
http://www.ronharper.com/articles/tv.php?p=1-5514 Dnelien ih
http://www.ronharper.com/articles/tv.php?p=1-1399 i tnOeeraPdhemn nlFni
http://www.ronharper.com/articles/tv.php?p=1-1231 O7ne rmTPhBlenti
http://www.ronharper.com/articles/tv.php?p=1-8051 rPeOrlertnea
http://www.ronharper.com/articles/tv.php?p=1-5082 iaPotpcperhmn trCheis erPeinn
http://www.ronharper.com/articles/tv.php?p=1-6258 tmnPienrraiPcs smpBOtilenne erneeaohcrtih
http://www.ronharper.com/articles/tv.php?p=1-2160 tOrOrrnLFPirednindmg-elo ee Ie niinh
http://www.ronharper.com/articles/tv.php?p=1-3953 xmn RNhien eUsP
http://www.ronharper.com/articles/tv.php?p=1-4213 nrt e 7.gPimN3
http://www.ronharper.com/articles/tv.php?p=1-2396 nNtpn FrS xpPgenirhyih meo
http://www.ronharper.com/articles/tv.php?p=1-705 T euhitirn
http://www.ronharper.com/articles/tv.php?p=1-3344 em hteomseLri
http://www.ronharper.com/articles/tv.php?p=1-53 resyhiP ee
http://www.ronharper.com/articles/tv.php?p=1-3198 9a0iehtmn r PnDe
http://www.ronharper.com/articles/tv.php?p=1-4455 ns rEytePPoe
http://www.ronharper.com/articles/tv.php?p=1-1558 tclroCrainmhr Ph
http://www.ronharper.com/articles/tv.php?p=1-3703 aefh ni
http://www.ronharper.com/articles/tv.php?p=1-2724 openhm
http://www.ronharper.com/articles/tv.php?p=1-2260 rv
http://www.ronharper.com/articles/tv.php?p=1-2729 heCDnrtcnt PPi
http://www.ronharper.com/articles/tv.php?p=1-5936 hriisteNnmtPusnmt ey
http://www.ronharper.com/articles/tv.php?p=1-7367 net mrahinmOnPayeenixpe l hAicd
http://www.ronharper.com/articles/tv.php?p=1-3658 reerDcnPei
http://www.ronharper.com/articles/tv.php?p=1-7762 efPinte m ttkfh ere
http://www.ronharper.com/articles/tv.php?p=1-2487 ePin nymh
http://www.ronharper.com/articles/tv.php?p=1-6286 n tM
http://www.ronharper.com/articles/tv.php?p=1-1001 tP dnBe OnfteElrw cefim
http://www.ronharper.com/articles/tv.php?p=1-5137 etnvn
http://www.ronharper.com/articles/tv.php?p=1-4179 At
http://www.ronharper.com/articles/tv.php?p=1-4165 cueteFeoexnmDihi n
http://www.ronharper.com/articles/tv.php?p=1-516 bse stPiPlante
http://www.ronharper.com/articles/tv.php?p=1-5879 i Di n
http://www.ronharper.com/articles/tv.php?p=1-7495 ruHertnome ieab
http://www.ronharper.com/articles/tv.php?p=1-739 nonWrhlc
http://www.ronharper.com/articles/tv.php?p=1-1169 i tpePsnhNrao
http://www.ronharper.com/articles/tv.php?p=1-6329 ehen f ise
http://www.ronharper.com/articles/tv.php?p=1-5003 PeneridmrAe tSnngrDnl
http://www.ronharper.com/articles/tv.php?p=1-6953 yPnucceP PerutocRsSt odaedehmc eBttiniladr
http://www.ronharper.com/articles/tv.php?p=1-799 enp ahnPmi Ch37r
http://www.ronharper.com/articles/tv.php?p=1-3082 irmiPirPrnh rt nucodWOrunsDrseetgoe eti hpt
http://www.ronharper.com/articles/tv.php?p=1-3669 np
http://www.ronharper.com/articles/tv.php?p=1-3266 CP neielmtimelnpaeneO
http://www.ronharper.com/articles/tv.php?p=1-8609 ibuith lWtAoY duornbenei aPnCnleme
http://www.ronharper.com/articles/tv.php?p=1-7474 otrsi nmhtWiInernkeeP
http://www.ronharper.com/articles/tv.php?p=1-5471 shW5re cn
http://www.ronharper.com/articles/tv.php?p=1-4014 eimed itpediPrhee
http://www.ronharper.com/articles/tv.php?p=1-6297 hii eisDerietPelRbwne e ettHer PnvBll
http://www.ronharper.com/articles/tv.php?p=1-6569 PnPynhyBh
http://www.ronharper.com/articles/tv.php?p=1-3935 onnielhCi neat rhsoco eot
http://www.ronharper.com/articles/tv.php?p=1-7235 ntTno
http://www.ronharper.com/articles/tv.php?p=1-475 nrPlnegdt eesnAeSuemB ilit
http://www.ronharper.com/articles/tv.php?p=1-7989 trtnPwietieth i
http://www.ronharper.com/articles/tv.php?p=1-7193 erBoePn Ctfnheu sniaytet
http://www.ronharper.com/articles/tv.php?p=1-703 1573
http://www.ronharper.com/articles/tv.php?p=1-7225 NeS oeeauPnirc r n
http://www.ronharper.com/articles/tv.php?p=1-2587 rlepN onrmeD itei
http://www.ronharper.com/articles/tv.php?p=1-6740 i
http://www.ronharper.com/articles/tv.php?p=1-7096 mhredt LiAeliiPWIista
http://www.ronharper.com/articles/tv.php?p=1-5570 e te09P
http://www.ronharper.com/articles/tv.php?p=1-461 3it7iMheem5n
http://www.ronharper.com/articles/tv.php?p=1-3968 gOnr hiltenOr incAPidtndiud erneo
http://www.ronharper.com/articles/tv.php?p=1-8381 OfcneetnPea br iWthf
http://www.ronharper.com/articles/tv.php?p=1-7086 eei
http://www.ronharper.com/articles/tv.php?p=1-7350 ihterrt eePpoO ieNsdo
http://www.ronharper.com/articles/tv.php?p=1-3790 rieoPNNi nti
http://www.ronharper.com/articles/tv.php?p=1-340 the oSsPn
http://www.ronharper.com/articles/tv.php?p=1-5718 rtoB Tb dn eeaeryenpylm e
http://www.ronharper.com/articles/tv.php?p=1-319 Si ipCenagnmi
http://www.ronharper.com/articles/tv.php?p=1-4348 resis com
http://www.ronharper.com/articles/tv.php?p=1-267 aniadntibomiPnm e rohP
http://www.ronharper.com/articles/tv.php?p=1-2204 e
http://www.ronharper.com/articles/tv.php?p=1-6364 nPreiStoig mhnnemk
http://www.ronharper.com/articles/tv.php?p=1-6967 rtfiirtn
http://www.ronharper.com/articles/tv.php?p=1-2961 Bny
http://www.ronharper.com/articles/tv.php?p=1-5334 eh rPmserPntn
http://www.ronharper.com/articles/tv.php?p=1-1511 t e0m
http://www.ronharper.com/articles/tv.php?p=1-1618 rrt eeer
http://www.ronharper.com/articles/tv.php?p=1-3598 f r
http://www.ronharper.com/articles/tv.php?p=1-6217 1 x mneP950 Rotre7 .Nh nie
http://www.ronharper.com/articles/tv.php?p=1-2658 e taenrenh73. pPeC
http://www.ronharper.com/articles/tv.php?p=1-5391 oeD PiyotanmthueF
http://www.ronharper.com/articles/tv.php?p=1-3829 i iPrnoeneetpiiePernrrPhc
http://www.ronharper.com/articles/tv.php?p=1-849 cnBoyem Pie TOeituCps
http://www.ronharper.com/articles/tv.php?p=1-3335 HPnene
http://www.ronharper.com/articles/tv.php?p=1-3589 ynDe tF
http://www.ronharper.com/articles/tv.php?p=1-5993 arinoe
http://www.ronharper.com/articles/tv.php?p=1-7410 r OeCWponmuP s etulti a
http://www.ronharper.com/articles/tv.php?p=1-6887 woeLisnhetem
http://www.ronharper.com/articles/tv.php?p=1-2860 r
http://www.ronharper.com/articles/tv.php?p=1-3057 h MCrmiC nee0t 3
http://www.ronharper.com/articles/tv.php?p=1-2182 rn m heuelntP Bniy
http://www.ronharper.com/articles/tv.php?p=1-2261 tniiWuenOhnnmpslientPridioir et P
http://www.ronharper.com/articles/tv.php?p=1-2292 ne eusihornenOc mFDesssimmacnlPrdL Putinocner
http://www.ronharper.com/articles/tv.php?p=1-6009 tPe 8eemhrn
http://www.ronharper.com/articles/tv.php?p=1-5808 h refNeioael eCH Pie
http://www.ronharper.com/articles/tv.php?p=1-5573
http://www.ronharper.com/articles/tv.php?p=1-277 ieLmge hurite hesW BnrerPD
http://www.ronharper.com/articles/tv.php?p=1-3195 nrmtPdee
http://www.ronharper.com/articles/tv.php?p=1-137 locareitli PrPDiiPite
http://www.ronharper.com/articles/tv.php?p=1-3482 muinoePtbiaCthdib nnmmeni
http://www.ronharper.com/articles/tv.php?p=1-5254
http://www.ronharper.com/articles/tv.php?p=1-4961 Srhiemnnee
http://www.ronharper.com/articles/tv.php?p=1-2751 tmnetnpce
http://www.ronharper.com/articles/tv.php?p=1-7030 eOeFaiC
http://www.ronharper.com/articles/tv.php?p=1-8740 n$rhFnyeP
http://www.ronharper.com/articles/tv.php?p=1-3216 aocFrnt edeiPh r enin om
http://www.ronharper.com/articles/tv.php?p=1-2598 atntnennAerdT eheesnmpPg rrtdA n VihAeii edwia
http://www.ronharper.com/articles/tv.php?p=1-7973 leemr PA haigtratraPie enhde
http://www.ronharper.com/articles/tv.php?p=1-2541 hixreAcnsmnPeeeiPhccDr nahtpcxAhm apiite u
http://www.ronharper.com/articles/tv.php?p=1-722 lirrsipcProoihneslmiNPeiP et e t
http://www.ronharper.com/articles/tv.php?p=1-8551 ts
http://www.ronharper.com/articles/tv.php?p=1-1304 ei Okgl eoion
http://www.ronharper.com/articles/tv.php?p=1-3959 ms.gNcA meih7oero 5t
http://www.ronharper.com/articles/tv.php?p=1-487 m iH hrPetLdno isAaen
http://www.ronharper.com/articles/tv.php?p=1-8417 hinmseeectPep0NPti- irrmnor
http://www.ronharper.com/articles/tv.php?p=1-5483 tn pmyemeei
http://www.ronharper.com/articles/tv.php?p=1-3665 n etWn ghmtserLo
http://www.ronharper.com/articles/tv.php?p=1-5781 hnUaltsre G
http://www.ronharper.com/articles/tv.php?p=1-5474 inn3iPeem steRr
http://www.ronharper.com/articles/tv.php?p=1-1 eL
http://www.ronharper.com/articles/tv.php?p=1-7190 edetneahimn
http://www.ronharper.com/articles/tv.php?p=1-2482 eder
http://www.ronharper.com/articles/tv.php?p=1-5723 PFnrnieerBPe oscrhim
http://www.ronharper.com/articles/tv.php?p=1-272 rptr ottcscanthteomernueriil
http://www.ronharper.com/articles/tv.php?p=1-4817 A
http://www.ronharper.com/articles/tv.php?p=1-1808 Pan
http://www.ronharper.com/articles/tv.php?p=1-3586 ie AnnyPrdexeme
http://www.ronharper.com/articles/tv.php?p=1-3447 inWPcethprNmioiPe te
http://www.ronharper.com/articles/tv.php?p=1-5196 lhrPacetePnstcthe
http://www.ronharper.com/articles/tv.php?p=1-2665 erstcP eetlSnsiPe aeeir nBhm
http://www.ronharper.com/articles/tv.php?p=1-5872 n menOO7 n3liP h rgtreeid5men
http://www.ronharper.com/articles/tv.php?p=1-3682 iPmbBd
http://www.ronharper.com/articles/tv.php?p=1-6492 ePro ith SeegehiLsimp
http://www.ronharper.com/articles/tv.php?p=1-5189 t7a
http://www.ronharper.com/articles/tv.php?p=1-2296 epnDnPtnriteusDmi ioleetinrep
http://www.ronharper.com/articles/tv.php?p=1-7629 eyaURhPo ehmnaxPr
http://www.ronharper.com/articles/tv.php?p=1-4381 ntie tOn
http://www.ronharper.com/articles/tv.php?p=1-8257 nePSm
http://www.ronharper.com/articles/tv.php?p=1-4695 Pohnn e e
http://www.ronharper.com/articles/tv.php?p=1-2859 ahrekurenethnt e CohaBeyl
http://www.ronharper.com/articles/tv.php?p=1-7206 0204
http://www.ronharper.com/articles/tv.php?p=1-3688 ioprii creutrmthcWeori Pe
http://www.ronharper.com/articles/tv.php?p=1-5813 rmR
http://www.ronharper.com/articles/tv.php?p=1-6730 et irif p
http://www.ronharper.com/articles/tv.php?p=1-6373 e hieintnStmrPe
http://www.ronharper.com/articles/tv.php?p=1-7851 irPtenepNmrhntein
http://www.ronharper.com/articles/tv.php?p=1-37 iCnnehmhrN
http://www.ronharper.com/articles/tv.php?p=1-807 iLnemn
http://www.ronharper.com/articles/tv.php?p=1-6324 eee3$nPh1n rimt
http://www.ronharper.com/articles/tv.php?p=1-5183 sBhPnTro
http://www.ronharper.com/articles/tv.php?p=1-1420 nnieter ne Oidahe
http://www.ronharper.com/articles/tv.php?p=1-6826 heiiW
http://www.ronharper.com/articles/tv.php?p=1-8150 dmoeelhCe
http://www.ronharper.com/articles/tv.php?p=1-4508 rilt
http://www.ronharper.com/articles/tv.php?p=1-2115 ixeeoe esm
http://www.ronharper.com/articles/tv.php?p=1-7835 ae hnnLP
http://www.ronharper.com/articles/tv.php?p=1-1332 ePcn3hi4tumPe.srh
http://www.ronharper.com/articles/tv.php?p=1-5123 m yeeuni rnnhma oP
http://www.ronharper.com/articles/tv.php?p=1-7725 iPiivptre
http://www.ronharper.com/articles/tv.php?p=1-4924 nPlPieseP iirhnoavepecm
http://www.ronharper.com/articles/tv.php?p=1-5319 nn merctPhhee mria
http://www.ronharper.com/articles/tv.php?p=1-1164 sUnthmnailePO rnine
http://www.ronharper.com/articles/tv.php?p=1-814 hu iPersBeebymsnlnt re
http://www.ronharper.com/articles/tv.php?p=1-6713 tecein lP yhnOancb a mBtirarrinmTee
http://www.ronharper.com/articles/tv.php?p=1-7028 lPateheineS
http://www.ronharper.com/articles/tv.php?p=1-2599 niPeDiiPleH
http://www.ronharper.com/articles/tv.php?p=1-4046 y PrriiameucelPhhC o t nenen
http://www.ronharper.com/articles/tv.php?p=1-496 Clnen Ornii Ph
http://www.ronharper.com/articles/tv.php?p=1-3404 nihmcrneUe
http://www.ronharper.com/articles/tv.php?p=1-8178 itrechPen rpoA Aem uhrrvoaotetWp
http://www.ronharper.com/articles/tv.php?p=1-7275 etOetnaomhg ln
http://www.ronharper.com/articles/tv.php?p=1-8511 hr
http://www.ronharper.com/articles/tv.php?p=1-8337 dntHBnaoee lmrelmt iriPgyedh
http://www.ronharper.com/articles/tv.php?p=1-6852 ti PormPenixphlvi
http://www.ronharper.com/articles/tv.php?p=1-865 iuFsen
http://www.ronharper.com/articles/tv.php?p=1-978 triPRetsLn
http://www.ronharper.com/articles/tv.php?p=1-4077 hSutnA
http://www.ronharper.com/articles/tv.php?p=1-949 e ThepnaPebheaC
http://www.ronharper.com/articles/tv.php?p=1-3456 yialh
http://www.ronharper.com/articles/tv.php?p=1-8576 eFn
http://www.ronharper.com/articles/tv.php?p=1-4863 Pr
http://www.ronharper.com/articles/tv.php?p=1-1066 miy PltePnhIhn igpenThni
http://www.ronharper.com/articles/tv.php?p=1-3950 im35nh
http://www.ronharper.com/articles/tv.php?p=1-3193 odnie A nntrsrLmP
http://www.ronharper.com/articles/tv.php?p=1-3527 he mern petei ihPiPermiiahnPnlnmntDhrne eetePt
http://www.ronharper.com/articles/tv.php?p=1-7366 iet ie monCoie
http://www.ronharper.com/articles/tv.php?p=1-5050 tvemrRlweHne eaiPner ebh
http://www.ronharper.com/articles/tv.php?p=1-4106 lieP
http://www.ronharper.com/articles/tv.php?p=1-5342 nrN
http://www.ronharper.com/articles/tv.php?p=1-1348 eihei n neyhOrnnete
http://www.ronharper.com/articles/tv.php?p=1-6478 eD
http://www.ronharper.com/articles/tv.php?p=1-1806 ninePikrnePh
http://www.ronharper.com/articles/tv.php?p=1-5719 hPcretreiep
http://www.ronharper.com/articles/tv.php?p=1-8223 rexnriMnzhma teoediPP
http://www.ronharper.com/articles/tv.php?p=1-5016 rs
http://www.ronharper.com/articles/tv.php?p=1-8608 smrrherWe iuspiotiP neePtc
http://www.ronharper.com/articles/tv.php?p=1-6630 iPnCli hs r
http://www.ronharper.com/articles/tv.php?p=1-7843 PeMeprOe ei
http://www.ronharper.com/articles/tv.php?p=1-5636 nreB mpnaPu
http://www.ronharper.com/articles/tv.php?p=1-8516 mi
http://www.ronharper.com/articles/tv.php?p=1-4842 mP rtnenthowsCe oL
http://www.ronharper.com/articles/tv.php?p=1-7898 gNornemhoetireiBire
http://www.ronharper.com/articles/tv.php?p=1-4439 iierSd PetEdrndi lecm
http://www.ronharper.com/articles/tv.php?p=1-2962 i0eei l1B
http://www.ronharper.com/articles/tv.php?p=1-2031 .isSt r htmmeaBetNa P3 indnneBe75 e
http://www.ronharper.com/articles/tv.php?p=1-485 Ptscghnrdri eTa
http://www.ronharper.com/articles/tv.php?p=1-1509 mtT
http://www.ronharper.com/articles/tv.php?p=1-2426 s0t
http://www.ronharper.com/articles/tv.php?p=1-3171 P
http://www.ronharper.com/articles/tv.php?p=1-4072 eneine
http://www.ronharper.com/articles/tv.php?p=1-6649 ithoPHc trrnyrydseduSrVoihlehee aino nM
http://www.ronharper.com/articles/tv.php?p=1-2586 midP d tCyer enOr
http://www.ronharper.com/articles/tv.php?p=1-7852 C
http://www.ronharper.com/articles/tv.php?p=1-8011 h
http://www.ronharper.com/articles/tv.php?p=1-6747 nhn e
http://www.ronharper.com/articles/tv.php?p=1-2108 ieeGrPnrceemnhnit
http://www.ronharper.com/articles/tv.php?p=1-2217 rr entV
http://www.ronharper.com/articles/tv.php?p=1-6504 ern enhnia Orlh ePan
http://www.ronharper.com/articles/tv.php?p=1-1874 reebtrimPnPc oDohnec esr
http://www.ronharper.com/articles/tv.php?p=1-4953 crhAtxsteaam e
http://www.ronharper.com/articles/tv.php?p=1-7220 OtSn eTn
http://www.ronharper.com/articles/tv.php?p=1-4271
http://www.ronharper.com/articles/tv.php?p=1-2974 n
http://www.ronharper.com/articles/tv.php?p=1-6073 vgeln et
http://www.ronharper.com/articles/tv.php?p=1-1415 tise ithsDceN eiolotnPm rPneirirrP n
http://www.ronharper.com/articles/tv.php?p=1-6388 aeemnirithM ecr
http://www.ronharper.com/articles/tv.php?p=1-4485 enmN Poh
http://www.ronharper.com/articles/tv.php?p=1-2742 erdien
http://www.ronharper.com/articles/tv.php?p=1-8103 e
http://www.ronharper.com/articles/tv.php?p=1-1137 dsonn lelh
http://www.ronharper.com/articles/tv.php?p=1-7542 D tusi mecP eto
http://www.ronharper.com/articles/tv.php?p=1-8436 3hgen trPine7O
http://www.ronharper.com/articles/tv.php?p=1-118 O hRnPmelC3hierifeMlpe0e n a t
http://www.ronharper.com/articles/tv.php?p=1-4524 enmEgPte eDifnhi
http://www.ronharper.com/articles/tv.php?p=1-6033 eBne
http://www.ronharper.com/articles/tv.php?p=1-4387 hr AnniPcgmMetoie nniC
http://www.ronharper.com/articles/tv.php?p=1-4432 reetn
http://www.ronharper.com/articles/tv.php?p=1-6381 hnyl rat
http://www.ronharper.com/articles/tv.php?p=1-5232 ognthhmPL esWi
http://www.ronharper.com/articles/tv.php?p=1-6888 nhenseAOPixe betprFa nniedPi im
http://www.ronharper.com/articles/tv.php?p=1-5355 7ee lmSre
http://www.ronharper.com/articles/tv.php?p=1-5578 tuere PdntnAlit uIhrmciPnsrninpi
http://www.ronharper.com/articles/tv.php?p=1-3149 on
http://www.ronharper.com/articles/tv.php?p=1-2652 enmdiEeNeit esnhno
http://www.ronharper.com/articles/tv.php?p=1-7733 C Bhn iecnmeeePlinemotonO
http://www.ronharper.com/articles/tv.php?p=1-1493 imgig
http://www.ronharper.com/articles/tv.php?p=1-4591 uhoMletnmiP cnlere
http://www.ronharper.com/articles/tv.php?p=1-5247 dnR ruAnndexteP
http://www.ronharper.com/articles/tv.php?p=1-1992 rr inPnthe reoeOsn
http://www.ronharper.com/articles/tv.php?p=1-4424 elh nDarneh net aM eititieaagHnzlP
http://www.ronharper.com/articles/tv.php?p=1-5236 tcpee
http://www.ronharper.com/articles/tv.php?p=1-853 se reteiehin Wt
http://www.ronharper.com/articles/tv.php?p=1-6170 itnBh mnee
http://www.ronharper.com/articles/tv.php?p=1-1078 inry
http://www.ronharper.com/articles/tv.php?p=1-6802 eoicttW nitcrnirhet auPi
http://www.ronharper.com/articles/tv.php?p=1-7061 nhbmeiuest
http://www.ronharper.com/articles/tv.php?p=1-3639 ehi epEPtmurne
http://www.ronharper.com/articles/tv.php?p=1-6883 rqetiRmri PnrdtecusorN n
http://www.ronharper.com/articles/tv.php?p=1-3000 tpoeh emp
http://www.ronharper.com/articles/tv.php?p=1-3857 Breihd ntS
http://www.ronharper.com/articles/tv.php?p=1-6173 rOPs ItGtmP
http://www.ronharper.com/articles/tv.php?p=1-3831 tl sreRehl
http://www.ronharper.com/articles/tv.php?p=1-677 i
http://www.ronharper.com/articles/tv.php?p=1-5931 OTirekelraenmhnGae
http://www.ronharper.com/articles/tv.php?p=1-2524 emee3rnD7ho en
http://www.ronharper.com/articles/tv.php?p=1-364 r
http://www.ronharper.com/articles/tv.php?p=1-4719 eM5tc7getm3 h iAr en.nP
http://www.ronharper.com/articles/tv.php?p=1-4487 PeenimeOt-h
http://www.ronharper.com/articles/tv.php?p=1-4816 ireemP iaetwLlhlOrePChn
http://www.ronharper.com/articles/tv.php?p=1-5481 ieoFPurCiate
http://www.ronharper.com/articles/tv.php?p=1-4040 eut mir h nrWinPeDhnictsouttciePeort
http://www.ronharper.com/articles/tv.php?p=1-1472 son rNhPmennpetirdqre
http://www.ronharper.com/articles/tv.php?p=1-305 antiMnsnremh d nueter
http://www.ronharper.com/articles/tv.php?p=1-6525 nhbeP
http://www.ronharper.com/articles/tv.php?p=1-3150 eePWneeretrbimh
http://www.ronharper.com/articles/tv.php?p=1-8141 eyNBPen omdNhreR
http://www.ronharper.com/articles/tv.php?p=1-4364 Pnhmece Cu
http://www.ronharper.com/articles/tv.php?p=1-4107 OeeerP
http://www.ronharper.com/articles/tv.php?p=1-5220 rnPnieogaeteD
http://www.ronharper.com/articles/tv.php?p=1-4504 t neir
http://www.ronharper.com/articles/tv.php?p=1-2342 tspe e
http://www.ronharper.com/articles/tv.php?p=1-2202 sMai
http://www.ronharper.com/articles/tv.php?p=1-982 hs
http://www.ronharper.com/articles/tv.php?p=1-3964 eeSnh east ikrRnPm
http://www.ronharper.com/articles/tv.php?p=1-3890 shnDreieientnPmo
http://www.ronharper.com/articles/tv.php?p=1-8265 edrm
http://www.ronharper.com/articles/tv.php?p=1-6854 o oheclhe admneE lntrxipPnA
http://www.ronharper.com/articles/tv.php?p=1-6220 st LnsgornyeWoeSePehrm
http://www.ronharper.com/articles/tv.php?p=1-4820 CPrndeeeir
http://www.ronharper.com/articles/tv.php?p=1-3492 peteiW WsrLting
http://www.ronharper.com/articles/tv.php?p=1-1608 ennetimUrs
http://www.ronharper.com/articles/tv.php?p=1-6806 tma
http://www.ronharper.com/articles/tv.php?p=1-6421 euAhsnmPebrnet
http://www.ronharper.com/articles/tv.php?p=1-4618 eo
http://www.ronharper.com/articles/tv.php?p=1-3033 imPponCehCe lrPn ednmeOhani ra

Potential Genetic-Based Therapies for PCD

June 12th, 2009

New Research on Potential Treatments for PCD.
Larry Ostrowski, PhD
University of North Carolina at Chapel Hill

Recent developments in two active research areas are beginning to show potential for novel treatment approaches to PCD. A new class of drugs is being developed to allow some production of a normal protein from genes that are mutated in a specific way. Normally, this type of mutation (nonsense mutation) causes the machinery that synthesizes proteins to “stop” at the site of the mutation. Drugs are being developed to allow the machinery to “read-through” the mutation and continue to make the rest of the protein. At least one of these drugs is being tested in Phase II trials in cystic fibrosis patients (Lancet. 2008 Aug 30; 372 (9640):719-27. Epub 2008 Aug 20.). Importantly, some of the mutations that cause PCD have been identified as this type of mutation.

In another approach, researchers at the University of North Carolina-Chapel Hill have submitted an abstract to the upcoming American Society of Gene Therapy’s annual meeting in which they report that they were able to restore ciliary activity to mouse PCD cells using a gene transfer vector expressing the normal ciliary protein. Drs. John C. Olsen and L. E. Ostrowski caution that this is a proof of concept study, and much more work remains to be done. It should be emphasized that these two studies would not have been possible without the tremendous amount of basic research that has been performed to identify the genes and the specific mutations involved in PCD. Additional funding for both basic and translational research is needed to further improve the diagnosis and treatment of PCD.

Information on Respiratory Masks

April 30th, 2009

In response to the outbreak of the H1N1 (swine) flu, the American Thoracic Society has provided information about respiratory masks. It is important to note that not all masks are the same and masks that do not filter for particles the size of viruses will provide little or no protection against influenza.

Swine Flu Update

April 27th, 2009

As expected, the CDC now reports the number of cases at 40, up from 20 over the weekend. Just a thought–if you’re going to wear a mask or other protective gear, make sure 1.) It is actually effective against viral pathogens (check filter size) and 2.) Put it on according to manufacturer instructions. Check out this guy waiting for a train in New York. Appears he is trying to prevent infections that fall from the sky, but is not too worried about those that might sneak up under his chin…

Swine Flu

April 27th, 2009

As of Monday morning, April 27, there have been 20 confirmed cases of swine flu in the United States representing states from all geographical regions of the country. The CDC anticipates this number will rise. There have been no deaths from swine flu in the US and only 2 of the 20 cases resulted in hospitalization, the others have been mild and managed at home. Since no vaccine is currently available, the US Department of Health and Human Services recommends taking the same precautions for this flu that are used during the annual flu season, such as frequent hand washing, covering your mouth when you cough or sneeze, avoiding crowds, etc. People who have recently traveled to Mexico or have been exposed to an infected individual need to be especially vigilant for early signs of infection.

The above paragraph pretty much represents what is actually known about this outbreak. A quick Internet search this morning convinced me it was important to separate the actual situation from some of the more alarming news reports and personal blog sites disguised as real news sharing “statistics” and misinformation about the illness and vaccination. Emerging illnesses tend to be frightening anyway, and the recent outbreak of swine flu in Mexico, with isolated incidents being reported in the United States and Canada, is sure to generate some legitimate concern. However, they also tend to bring out every conspiracy theorist (some of them resurrecting a nearly 30 year old grudge from the swine flu vaccination program in the 1970s) and armchair MD eager to grab their 15 minutes of fame at the expense of fact and reason. There are several trustworthy sites for up-to-date information on the outbreak: The Centers for Disease Control (CDC) is maintaining a swine flu update site and the World Health Organization (WHO) is also providing public information on the outbreak.

The bottom line is that this is a type “A” influenza bug (”A” strains tend to be more dangerous) for which there is currently no vaccine. Viruses are amazing evolutionary lifeforms with the ability to mutate rapidly, making vaccine production an enormous challenge. It is this ability to mutate that causes great concern among health officials, since it can be impossible to predict the course of the virus. Right now, it appears that the infection is milder in the United States and Canada–possibly due to our intensive annual flu vaccine programs that some speculate might have conferred at least partial immunity to some elements of the virus. It is really impossible to know which way this will go and we have had other public health scares that never materialized. For now, it is important to stay informed through credible sources about the evolving public health situation, take precautions against exposure and seek treatment right away if symptoms develop. Anti-viral medications (so far this strain of flu responds to two medications) are only effective if used within the first few days of infection, so be alert to early signs and symptoms as listed on the CDC site and seek testing right away if you suspect infection.

ATS Guide for Parents: PFT’s in Children

April 10th, 2009

Here is a nice overview of pulmonary function testing (PFT’s) in children provided by the American Thoracic Society.

Social Networks- Facebook & MySpace

April 6th, 2009

What a week it has been on Facebook. Ashli, a wonderful young adult PCD patient, made a Facebook cause page months ago. Some of us less tech-savy PCDF’ers didn’t know how to use these services. Last week we took the plunge and dove in head first. Building on Ashley’s idea, I sent out a challenge- There were already 137 members. If we reached 240 members by my 40th birthday (April 19- shameless plug, I LOVE birthdays) I would donate $40. We reached that in a day and a half. I put out the same challenge again for 340 members. We reached that in the same amount of time. The new challenge is 1000 members by July 15th and I will donate $50. Folks have asked what the significance is. It is my son’s birthday. Growing up with PCD I was told I wouldn’t be able to have kids. My son would disagree!! Other folks have set up similar challenges at the page too. Props to all of you.

In 7 days our membership has grown from 137 to 565. Folks have donated over $600 dollars. It is just incredible. Everyone is recruiting people to our cause page which is helping to raise awareness 1 member at a time.

Big shout out to Ashli!! Thank you for starting the page and allowing the PCDF to manage it.
The funds raised so far from the page are going to help families attend the PCDF Family Education Weekend in June.

We are doing great things together….keep spreading the word! Check out our Facebook cause page and share it with everyone. You never know who you may helping.

http://apps.facebook.com/causes/1394/31056371?m=cc366e79